July 19, 2020 Collab Salon: How to live whilst dying?What children and young people with a Life Limiting Illness (LLI), can teach us about living

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  • July 19, 2020
    5:00 pm - 6:30 pm

How to live whilst dying?
What children and young people with a Life Limiting Illness (LLI), can teach us about living

with Dr Claire Cooley (Kent, United Kingdom)

Sunday, July 19, 2020: 5pm NY time

Having had the privilege of working with many remarkable children and young people and their families, during some of the most challenging times of their lives, I hope to share some of what we learnt together about living and not just surviving.  This includes;

  • Finding the wonderfulness in a Paediatric Intensive Care Unit (PICU).
  • Living as a family in Hospital.
  • Holding onto your dreams even when you are being told you could die.
  • Choosing how to say goodbye.

 By sharing the lessons I have learnt I hope to inspire you to see the strength and resilience children and young people show in the most challenging situations, how to move away from the concept of surviving and move towards living, and how hope and life can be found in the darkest moments including death.  This is just a snap shot and cannot explore all the depths and complexities the very concept of children and young people dying raises, but I hope it will generate creative discussion and inspire innovative ways of thinking about working with children and young people with a LLI and their families. Dr Claire Cooley, Consultant Clinical Psychologist

Learning Objectives

Participants will:
1- Learn about the creative ways in which they can collaborate with children and young people and help them have a say about their care.
2. Discover ways to help children and young people and their families ‘live’ in extraordinary environments like hospitals.
3.  Explore how to notice and create ‘wonderfulness’ in some of the most difficult moments such as an intensive care environment and at end of life.


“From before I even left school I knew psychology was the right path for me to fulfil my desire to do something that would help others.  Every decision I made brought me closer to my goal of being able to work with children, young people and their families.  From before I even qualified with my doctorate in Clinical Psychology from the University of Surrey in 2013 I had carved a pathway working in Paediatrics with children and young people with a specialist interest in working with children and young people who had a diagnosis of a life-limiting illness and the associated end of life care some of these cases inevitably led to.  Pursuing an ambitious doctoral research thesis exploring the complex dynamics surrounding communication processes around children and young people with a life-limiting illness, I have had a desire to support children and young people in having their voices, stories and wishes heard by those around them and subsequently influence the care they receive and the life they live.  With personal experiences of ill health and finding the strength and resilience to adapt and keep living life to the full these are concepts close to my heart and helped shape the practitioner I am today.  I have had the privilege to work with many remarkable children, young people and families throughout my work in Paediatric Oncology at The Royal Marsden Hospital and Paediatric Clinical Psychology Service at the Royal Brompton Hospital in the UK, where I worked with children and young people with a diagnosis of Congenital Heart Defect, and their families.  Having recently retired from the NHS due to ill health I am excited to be starting a new journey as an independent Consultant Clinical Psychologist, and I am already enjoying working on a number of projects around sharing my experience, knowledge and innovative ways of working with these remarkable individuals and their families, with the constant support and encouragement from my mentor and supervisor David Epston.  Outside of the professional sphere, I am a single parent to my own remarkable 9y/o daughter, our family is completed by the love of two boxer dogs and our cat, and as a way to enjoy the moment and find the beauty all around us even on the darkest day Photography has become one of my creative outlets.  If anyone would like to get in touch I am happy to be contacted on my email [email protected]

Dr Claire Cooley, Consultant Clinical Psychologist



Venue Phone: https://zoom.us/j/8024720481

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2019-10-05T14:55:39-05:00September 20th, 2019|0 Comments

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